What is your role within the Academic Collaborative Centre related to people with PIMD?
Within the Academic Collaborative Centre, as a senior researcher, I focus on research aimed at supporting the relatives of people with PIMD, such as parents, brothers, and sisters, specifically looking at their quality of life. Additionally, I am a assistent professor at the University of Groningen, Department of special needs eduction where I teach courses related to people with intellectual disabilities, including PIMD.
What do you hope to achieve?
I aim to bring attention and recognition to the important and intensive role that parents, brothers, and sisters play in the life of someone with PIMD. By conducting research, we gather knowledge about the (lived) experiences, and what it means to be a parent, brother, or sister of someone with PIMD. Additionally, I want to develop – together with relatives- practical tools that make their lives a bit easier or more fulfilling.
Related research of Jorien
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