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PIMD Knowledge Agenda

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Recent years have seen a relative upsurge in scientific research into people with PIMD. An overview of the knowledge derived from such research is a useful resource for those involved in supporting people with PIMD. Most of what we do at the Academic Collaborative Centre related to people with PIMD (ACC-PIMD) is inspired by questions that we receive from those involved in the day-to-day support of people with PIMD. We already have a PIMD Research Agenda comprising questions from parents. We created this agenda in collaboration with EMB Nederland (previously BOSK) and Handicap NL.

The next step is to conduct research that will lead to the drawing up of the PIMD Knowledge Agenda. Our aim is to find out what questions healthcare professionals are facing, based on what they come across in their day-to-day work.

Benefits to practice

Using the input of these healthcare professionals, we will draw up a knowledge agenda prioritising the themes that they deem the most important in their support for people with PIMD. We will also take into consideration what information is already available in scientific literature and where the most promising research opportunities lie. This approach will help to ensure that future research remains focused on actual needs.

About the researcher

Read more about Gerdine Douma

Gerdine Douma

Senior researcher
University of Groningen

What is your role within the Academic Collaborative Centre related to people with PIMD?

I am a senior researcher at the Academic Collaborative Centre related to people with PIMD (ACC-PIMD). I am involved in a number of different projects, together with colleagues. One of them entails compiling a knowledge agenda with questions from healthcare professionals about supporting people with PIMD. In another project, we are researching how SNOEZELENis being used around the world.

What do you hope to achieve?

I hope to make a positive contribution to people with PIMD and their loved ones. The ACC-PIMD’s prioritisation of a close collaboration between science and practice makes it an excellent context in which to work towards achieving my goal. These strong ties make it relatively easy for us to tailor our research to questions from practice and to ensure that the results of our research are implemented into practice.