What is your role within
the Academic Collaborative Centre
related to people with PIMD?
I am one of two knowledge brokers working at the Academic Collaborative Centre related to people with PIMD. We collect knowledge: we want to know what questions the families of children with PIMD have and what questions our colleagues in the field have. Those questions can then be added to the knowledge agenda. At ’s Heeren Loo, I work as a healthcare psychologist within the PIMD Centre of Expertise, where we translate scientific knowledge into practice by, for example, developing training materials.
What do you hope to achieve?My goal is to make knowledge accessible and to ensure that it gets to where it needs to be. People with PIMD have a right to growth and autonomy, which means giving them the right support. And the right support is dependent on scientists, professionals, parents and other relatives all being able to share what they know.