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Assessment of people with PIMD

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Introduction

The focus of this research project is the assessment of people with PIMD. The first step was to conduct an international inventory. This took the form of an online survey in which professionals were asked what forms of assessment they use in their support of people with PIMD, to what end, and what difficulties they encounter.

A literature review was then used to examine the quality of the instruments used, the main focus being on whether these instruments had been specifically developed for this target group and whether their psychometric qualities had been investigated. Next, the validity of the Behavioural Appraisal Scales (BAS) was analysed. This instrument was developed to measure the functional abilities of people with PIMD. We are now investigating how to adjust this instrument to make it even more suitable for use with the target group. The final step will be to develop a new version of the Behavioural Appraisal Scales, based on the feedback received from professionals.

Benefits to practice

As well as generating an overview of which assessment methods are currently in use and what difficulties professionals encounter when using them, this research project will also yield a new version of the Behavioural Appraisal Scales. This instrument will give insight into what individuals can and cannot do. Their support can then be fine-tuned in such a way that it will help them to reach their full potential.

Literatuurreview

Door middel van een literatuurreview is de kwaliteit van ingezette instrumenten onderzocht, waarin voornamelijk is gekeken of instrumenten ontwikkeld zijn voor de doelgroep en of instrumenten onderzocht zijn op psychometrische kwaliteit.

Validiteit Gedragstaxatie-Instrument (GTI)

Vervolgens is de validiteit van het Gedragstaxatie-Instrument geanalyseerd. Dit is een instrument dat ontwikkeld is om functionele mogelijkheden bij mensen met EMB in kaart te brengen. Daarna is onderzocht of en hoe het instrument aangepast moest worden om het toepasbaarder te maken bij de doelgroep. Uiteindelijk is op basis van de feedback van professionals een nieuwe versie van het Gedragstaxatie-Instrument ontwikkeld.

Voor de praktijk

  • Dit levert een overzicht op van de stand van zaken: welke assessmentmethoden worden zoal ingezet? Welke knelpunten worden ervaren door professionals?
  • Daarnaast levert het een nieuwe versie van het Gedragstaxatie-Instrument op. Dit kan inzicht geven in wat iemand wel kan en niet kan. Daar kan ondersteuning op worden afgestemd, bijvoorbeeld om ontwikkeling te stimuleren.

About the researcher

Read more about Marleen Wessels

Marleen Wessels

Senior researcher
University of Groningen

What is your role within the Academic Collaborative Centre related to people with PIMD?

I am a PhD student at the University of Groningen. The focus of my doctoral research is the assessment of people with PIMD. Assessment generates insight into these individuals’ abilities, preferences, wishes and needs, so that the support offered to them can be tailored accordingly.


What do you hope to achieve?

I want to see more information become available about the quality of the assessment of people with PIMD. At present, very few assessment methods are available that have been developed specifically for this target group and tested for psychometric quality. I also want my research to contribute to the improvement of the psychometric quality of an instrument that measures functional abilities. I am a strong believer in the need to strengthen the links between science and practice.