Who will notice when I start forgetting things?
Status: Closed
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The life expectancy of people with PIMD has increased significantly. As a result, more individuals with PIMD will develop dementia later in life. The challenge facing those caring for these individuals is that to date, very little is known about how to detect and diagnose dementia in people with PIMD.
About this research
The aim of this research project is to find out how dementia manifests itself in people with PIMD. This entails mapping the relevant symptoms. Using a combination of literature and medical history research, focus groups, questionnaires and interviews with hands-on experts, we will draw up an initial version of a list of symptoms of dementia in people with PIMD. We understand from those working in the field that there is a strong desire for opportunities to share knowledge and experiences relating to dementia in people with PIMD. As part of this project, we will therefore also research the information needs of families and healthcare professionals and we will use our findings as the basis for the development of an online course.
Benefits to practice
Healthcare professionals and families will be able to use both the list of symptoms and the online course as tools to help them to recognise when a person with PIMD is becoming forgetful.
Please check this website: Verstandelijke beperking & dementie.
Team
PhD student Maureen Wissing, Peter De Deyn, Alain Dekker, Hans Hobbelen, Aly Waninge.
Articles
In Journal of Applied Research in Intellectual Disabilities:
In Journal of Mental Health Research in Intellectual Disabilities:
Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: PracticeBased Observations of Symptoms