Quality of life of relatives of people with a disability
Status: On going
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The purpose of this research project is to gain insight into how the relatives of people with a disability rate their quality of life, what their experiences are and which factors are associated with their quality of life.
Three questions
The three questions addressed in this research project are:
1. How do relatives of people with a disability rate and perceive their quality of life?
2. Which characteristics of these relatives influence how they perceive their quality of life?
3. Which characteristics of the person with a disability influence how this person’s relatives perceive their quality of life?
Answers to the above questions will be sought via a digital questionnaire, research and a number of focus groups, including a group comprising the relatives of people aged 30 or above with PIMD.
Benefits to practice
To gain insight into the quality of life of relatives of people with a disability, and in particular people with PIMD.
About the researcher
What is your role within the Academic Collaborative Centre related to people with PIMD?
Within the Academic Collaborative Centre, as a senior researcher, I focus on research aimed at supporting the relatives of people with PIMD, such as parents, brothers, and sisters, specifically looking at their quality of life. Additionally, I am a assistent professor at the University of Groningen, Department of special needs eduction where I teach courses related to people with intellectual disabilities, including PIMD.
What do you hope to achieve?
I aim to bring attention and recognition to the important and intensive role that parents, brothers, and sisters play in the life of someone with PIMD. By conducting research, we gather knowledge about the (lived) experiences, and what it means to be a parent, brother, or sister of someone with PIMD. Additionally, I want to develop – together with relatives- practical tools that make their lives a bit easier or more fulfilling.
Research projects by Jorien binnen de AW-EMB