LIFE ID Intervention
Status: On going
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This is a four-year project in which various healthcare, educational, research and knowledge institutions (including ACC PIMD) collaborate on a multicomponent and multilevel personalized lifestyle intervention for adults with an intellectual disability. In this project, specific attention is paid to people with people with severe or profound intellectual and multiple disabilities (PIMD).
The goal is to deliver a multicomponent and multilevel personalized lifestyle intervention. With this intervention, healthcare professionals can offer effective, personalized lifestyle support to adults with an intellectual disability, their family members and direct support professionals. This intervention will be developed and tested for feasibility and effectiveness within four work packages, with one work package explicitly focused on the necessary preconditions for implementation and embedding.
About the LIFE ID Intervention
The LIFE ID intervention (LEEV! in Dutch) is designed for all adults with intellectual disabilities who have a question about their lifestyle. These questions can be broad, such as the desire to have more energy, to tire less quickly, to achieve a healthy weight, or to be able to participate better. The intervention contributes to the personal goals of the person, using an integral approach. In doing so, the intervention focuses explicitly on the person’s own environment, because people with intellectual disabilities in particular need the people around them and a health-promoting environment.
Why this project?
People with intellectual disabilities live longer, but ageing is often accompanied by high levels of inactivity, unhealthy dietary habits and health problems that arise at a younger age. This puts this group at a higher risk of age- and lifestyle-related diseases and therefore requires specialized lifestyle support.
Specifically for people with PIMD
For the group of people with severe or profound intellectual and multiple disabilities it is also necessary to develop additional knowledge about motor activation and nutrition. To develop this knowledge, in this project specific attention is paid to adults with PIMD.
For practice
The aim of the four-year project is to deliver a multicomponent and multilevel personalized lifestyle intervention that enables healthcare professionals to provide effective lifestyle support to adults and their family members and caregivers.
About the researchers
What is your role within the Academic Collaborative Centre related to people with PIMD?
My research topic is lifestyle in people with a moderate to profound intellectual disability. My particular focus is on direct support professionals and the support that they can provide in the areas of nutrition and physical activity. During the research, we have already created a place for lifestyle in education of direct support professionals. In my role as knowledge broker for education I am going to expand this. In doing so, I focus on how we can create a place for the knowledge and expertise from the Academic Collaborative Centre into the education of professionals who work with people with
What do you hope to achieve?
People with PIMD have the right for a good life. Therefore, they need support, including from professionals. By embedding current knowledge and expertise from the Academic Collaborative Centre in education, I hope that professional will be better equipped to provide optimal support to people with PIMD and their loved ones.
Research projects by Annelies binnen de AW-EMB
What is your role within the Academic Collaborative Centre related to people with PIMD?
I represent Hanze University of Applied Sciences in the Management Team. I am also involved in various doctoral research projects within the ACC-PIMD as a second supervisor. These research themes include motor activation, participation and the quality of life of families who have a child with PIMD.
What do you hope to achieve?
My goal is to meet the need expressed by those involved in the day-to-day support of people with PIMD for theory-based, scientifically underpinned knowledge surrounding diagnostics and treatment. Both in practice and as a scientist, it is my strong desire to advocate for people with severe or profound visual, intellectual and motor-related disabilities. I want to contribute to the generation of new knowledge in the context of a sound scientific process that recognises the value of input from families and professionals.
Research projects by Aly binnen de AW-EMB
- Who will notice when I start forgetting things?
- A hidden problem
- LIFE ID Intervention
- Healthy ageing: elective course
- Developing together: more attention for people with EMB in education
- Let’s move on – improvement of an interprofessional and multilevel Healthy Ageing minor
- Motor Activity Training Program: MATP
- Healthy ageing: elective course unit
- Moving together – Towards structural and meaningful motor activation of people with profound intellectual and multiple disabilities